The loss of privacy for AYAs with life threatening illness. A study by Dr. Anne Grinyer

"All my research findings suggest that parents are willing to do anything to support their sons and daughters through cancer. They make physical, emotional and financial sacrifices of the highest magnitude, yet many are not prepared for the intimate care that they need to provide or the distress that an AYA will feel at being dependent on such care. There is no easy answer to this distressing situation; some families may be able to access professional carers; others feel they have no choice but to do what they believe to be their ‘duty’. For those who do so with difficulty, it might lessen any feelings of guilt if they know that it is not unusual that giving intimate care to AYAs generates feelings of ‘incongruent intimacy’."

Read more about Dr. Anne Grinyer's study on the Cancer Knowledge Network website