There is recognition that teenagers and young adults with cancer merit age-appropriate specialist care. However, outcomes associated with such specialist care are not defined. Patient experience and patient-reported outcomes such as quality of life are gaining importance. Nevertheless, there is a lack of theoretical basis and patient involvement in experience surveys for young people.

Authors: L.A. Fern, R.M. Taylor, J. Whelan, S. Pearce, T. Grew, K. Brooman, C. Starkey, H. Millington, J. Ashton, F. Gibson

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